On July 6, 2023, the Innovative Genomics Institute, a collective of researchers focused on genome research, released a set of recommendations and a report titled Making Genetic Therapies Affordable and Accessible: IGI’s New Recommendations.
This report is the product of a yearlong process of deliberation among experts in the fields of genetic therapy, intellectual property, patient access, and more. Among those experts were Jamie Love of Knowledge Ecology International, UAEM North America President Reshma Ramachandran, and Julia Barnes-Weise of the Global Healthcare Innovation Alliance Accelerator.
UAEM executive director Justin Mendoza applauded this report, “Innovative Genomic Institute’s report charts out a set of ethical and timely considerations for the business models and access policies that would make cutting edge genetic therapies actually available for low-income populations who may need them.”
The full report, along with IGI’s press statement and executive summary are available at IGI’s website:
